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Links NIH Clinical Center in Bethesda, MD, contact the NIH Patient Recruitment Office: Tollfree: (800) 411-1222 TTY: (866) 411-1010 Email: prpl@cc.nih.gov For information about clinical trials sponsored by private sources, contact: www.centerwatch.com Children’s Craniofacial Association 13140 Coit Road Suite 517 Dallas, TX 75240 USA Phone: (214) 570-9099 Toll-free: (800) 535-3643 Email: contactCCA@ccakids.com Website: http://www.ccakids.com European Skeletal Dysplasia Network Institute of Genetic Medicine Newcastle University Newcastle upon Tyne, NE1 3BZ United Kingdom Phone: 441612755642 Email: info@esdn.org Website: http://www.esdn.org FACES: The National Craniofacial Association PO Box 11082 Chattanooga, TN 37401 Phone: (423) 266-1632 Toll-free: (800) 332-2373 Email: faces@faces-cranio.org Website: http://www.faces-cranio.org Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Phone: (301) 251-4925 Toll-free: (888) 205-2311 Website: http://rarediseases.info.nih.gov/GARD/ NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse One AMS Circle Bethesda, MD 20892-3675 USA Phone: (301) 495-4484 Toll-free: (877) 226-4267 Email: NIAMSinfo@mail.nih.gov Website: http://www.niams.nih.gov/ | 
  
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